Conference

I went to a Ectodermal Dysplasia seminar in Iowa City on Friday. Probably wanting to know what the heck that is, Me and My daughter Emilee were born with it, its not very common but is affect few people, their is only 3 people in Burlington Iowa that has it, me, Emilee and another girl I have met. It affects your hair, teeth, skin and sweat glands. Anyways went to this seminar and learned alot even though I was only their for a few hours met some really interesting people. Emilee and I are not affected as bad as some of these people, some don't have hair, some don't have teeth at all. Some has so dry hands and scalp that they have sores on them. Me and Emilee are blessed and are not as bad as some of the people we saw on Friday. The next seminar will be next July and I sure am going to save up and try to go so I can learn more and be able to be their for all 3 days, the next one is in Virgina so that will be neat. I learned alot so I should be able to help Emilee out alot with some of her medical problems. Back when I found out we didn't know anything or how to get help they even help you get your insurance to pay for dentures, Emilee probably have to have dentures since she wont get all her teeth if you are ever interested to learn more you can go to www.nfed.org. Well it was the neatest seminar and while I was at the seminar they had a day camp for kids. To drop your child off you had to have your picture taken with her then you had to get a bracelet with the same number that she had and sign her in so when I went to pick her up they had to see the bracelet number and look up our pic so they new she was going with me and not someonelse which was so safe and nice to know that not anyone could pick her up. She got along with the kids and the weirdest thing was a few of them kind of looked like her or had features that reminded me of Emilee kind of weird but lots of fun and cant wait to go next year.

Iowa City Trip to the Dentist

Emilee had to have 4 of her teeth pulled. I tried to keep her up until late so she could have a bed night snack, well she made it up until about 10:00 had a snack and went to bed I sought she would sleep until 9 wrong answer she was up by 715am and poor girl was hungry so I had her take a shower then we read some books. I tried to keep her busy until we left town. I even went with out eating so I would hurt her feelings. We got to Iowa City and Emilee did excellent job I was so proud of her. They were going to give her something to drink to sedate her and then they put the IV in but the nurse, we had talked her into having nothing to drink and putting some cream on her arm to numb it and then about 30 mins later he ended up put an IV in and she did awesome I was so shock she didn't even cry. So they let me stay in until they got her already, they wanted to but some oxygen on her while they sedated her and started crying cause she was scared, told her it would be ok and finally she said in a little tiny voice. "I guess I could give it a try". It only took them about 10 min or less to do it and the doctors and nurses told me when I went back that she was a wake and did a very good job, they said she was taking during the procedure. So Emilee did a excellent job we were so proud of her. Her friend Brittney and I think that helped. So she is doing fine now.

I sought I try something different out, I have been on my space but don't right blogs that much on their and wanted to try this out, few of my friends have one and I wanted to try it out. I am not a good writer but going to give it a try. I have 4 children, 2 is mine and 2 is his. My kids are 11 year old boy and 7 year old girl who thinks she is 16. My husband has a 17 year old and 21 year old girls. I know your thinking wow she must be young which I am but, my husband is 10 years older then me but he is a wonderful husband, most of the time. My stepdaughter that is 21 year old is having a baby. NO i am not going to be a grandma, not yet. Even thinking that at the age of 33 that I going to be a grandma I don't think so, ill have to find me a name to call me until I want to be called grandma.

My stepdaughter the 17 year old just got her Drivers License last Friday and she was already to drive around the town and drive to her friend, well when her dad said not yet lets gets some more experience then she can drive. Was not very happy about that.

Now my 7 year old daughter she is so funny, she went to her dads the other day and since her dad had to work Saturday morning he dropped them back off at the house. In the meantime, I am still in bed told the kids to wake me up when they get their, wont do that again they decided they would not wake me up and saw my cell phone out let me tell you, ya don't need to memorize numbers no more cause we got cell phones and the numbers are already programmed in the phone and mine was lying on the counter so my children decided to call my nephew since they new he was with me dad and left a message on his phone that no one was here, so that they would come pick them up, except we were in bed sound asleep, I heard them running around the house so I got up, its kind of funny cause if you heard the message you would of died laughing. So now I set my alarm and I get up and I put my cell with me in my room. Kids learn fast on how to use cell phones.

So tomorrow we are headed up to Iowa City for my 7 year old to have 4 teeth pull has to have them pulled for a surgery that will be coming up in about 1 year so they have to get ready for it. Like I said I am not very good writer or a speller so forgive me just sought I give it a try.

I figure out how to get the pictures below instead of up above Ill post some, maybe I can get some hints from Carrie. Hope you all in enjoy.